Canadian Hereditary Ataxia Registry and Monitoring (CHARM) Study
Summary
We are enrolling patients with hereditary ataxia to participate in a clinical and research registry so we can improve diagnosis, prognosis, and treatment of these disorders.
Eligibility
Eligible ages: 18 to 99
Accepts healthy participants: Yes
Inclusion criteria:
We seek adult participants who:
1. Have a genetic cause of ataxia identified;
2. Are at risk of developing ataxia due to a known gene mutation that runs in the family, but have yet to develop symptoms, or;
3. Those who have been told by a doctor that they have a genetic form of ataxia, but no gene mutation has been identified.
Exclusion criteria:
You are not eligible for this study if you do not have a genetic form of ataxia or if you are not yet 18 years of age.
Participate
Fill out the following form if you want to participate in this research
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Additional information
Contact information
To learn more, contact us via email or telephone.
Principal investigator:
Vikram Karnik
Clinical trial:
No
REB-ID:
REB26-1057