Fetal Brain Conditions - Creating family centered outcome prediciton

Summary

When a brain problem is identified in a baby before it's born (medical term: fetus), doctors try their best to predict how the brain problem will affect the fetus and their family using information from fetal brain pictures (magnetic resonance imaging; MRI). We don't have data to tell us how well doctors predict outcomes based on fetal MRI. Before we can study how predictions and outcomes line up, we have to know what families want to be predicted. We need families with experience with a fetal brain problem to tell us what they wanted or wished to know during the pregnancy.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 18 to 80

Accepts healthy participants: Yes

Inclusion criteria:

Parent (of any sex or gender, birth parent or partner) who has experienced:
- a fetal brain problem diagnosed during the pregnancy
- regardless of the outcome of the pregnancy

Exclusion criteria:

- fetal brain problems diagnosed only after birth

Participate

Fill out the following form if you want to participate in this research

Method of contact

Additional information

Contact information

Lab email: pblab@ucalgary.ca

Principal investigator:

Mary Dunbar

Clinical trial:

No

REB-ID:

REB24-1464