Genetic care for ALS in Canada

Summary

In this study we are collecting information about access to genetic testing and genetic care for ALS in Canada. This is a questionnaire study in which we will collect demographic and health information. This will inform how genetic care for ALS is provided across Canada and whether there are opportunities to recommend additional training, support, or resources to certain regions.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 18 to 100

Inclusion criteria:

People who have a diagnosis of ALS, or a suspected diagnosis of ALS, are eligible to participate.
Participation of this study requires reviewing and signing a consent form.

Participate

Fill out the following form if you want to participate in this research

Method of contact

Additional information

Contact information

Please use the email contact form to reach a member of the study team.

Principal investigator:

Gerald Pfeffer

Clinical trial:

No

REB-ID:

REB24-1659