Genetic care for ALS in Canada
Summary
In this study we are collecting information about access to genetic testing and genetic care for ALS in Canada. This is a questionnaire study in which we will collect demographic and health information. This will inform how genetic care for ALS is provided across Canada and whether there are opportunities to recommend additional training, support, or resources to certain regions.
Eligibility
Eligible ages: 18 to 100
Inclusion criteria:
People who have a diagnosis of ALS, or a suspected diagnosis of ALS, are eligible to participate.
Participation of this study requires reviewing and signing a consent form.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
Please use the email contact form to reach a member of the study team.
Principal investigator:
Gerald Pfeffer
Clinical trial:
No
REB-ID:
REB24-1659