(Kidney) Recipients and Donors In Assessment Navigation Tool (RADIANT)
Summary
For patients with severe kidney disease, a kidney transplant from a living donor can be life-saving. For this, both the recipient and the donor have to undergo an assessment process to determine eligibility. This can be a complicated process that involves lab tests, imaging, and appointments with kidney doctors and surgical team.
Ideally, this process should be efficient, but for many recipients and donors, it can take over a year to complete. During this time, recipients and donors often do not know where they are in the process nor what they should be doing at a given point to complete the process. This can leave patients feeling confused, frustrated, and helpless, which can be a barrier to someone donating or receiving a kidney transplant.
We want to make this experience and process better, and we need the help of patient donors and recipients (both those who are currently going through the process and those who have gone through it in the past) to tell us about their experiences - what went well, what didn't go so well, and what could be better.
We're using Human-centred-design to make this happen. This is a creative process that, well, puts the human (that's YOU) in the centre of what we build and create, so you'd be working WITH us to make things better for patients like you in the future. Can you help?
Eligibility
Eligible ages: 18 to 120
Accepts healthy participants: Yes
Inclusion criteria:
• Adults, 18 years old or above.
• Kidney transplant donors and recipients attending (or have attended) the Calgary transplant clinic and/or their caregivers.
• Able to communicate in English (for interviews / focus groups).
• Available to attend a focus group or interview in Calgary, either at the Foothills campus of the University of Calgary, a suitable and mutually agreeable location within the greater Calgary area, or via online video conferencing software (i.e., Zoom).
Exclusion criteria:
• Individuals who have not attended the Calgary transplant clinic.
• Unable to communicate in English.
• Unable to attend a focus group or interview at a mutually agreeable location in the greater Calgary area or with video conferencing software within the data collection time period.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
To learn more about this study, or to express interest in the study, please contact us at the email address or phone number below and we'll get back to you within 1-3 business days. Thanks!
Principal investigator:
Ngan Lam
Clinical trial:
No
REB-ID:
REB24-1888