(Kidney) Recipients and Donors In Assessment Navigation Tool (RADIANT)

Summary

For patients with severe kidney disease, a kidney transplant from a living donor can be life-saving. For this, both the recipient and the donor have to undergo an assessment process to determine eligibility. This can be a complicated process that involves lab tests, imaging, and appointments with kidney doctors and surgical team.

Ideally, this process should be efficient, but for many recipients and donors, it can take over a year to complete. During this time, recipients and donors often do not know where they are in the process nor what they should be doing at a given point to complete the process. This can leave patients feeling confused, frustrated, and helpless, which can be a barrier to someone donating or receiving a kidney transplant.

We want to make this experience and process better, and we need the help of patient donors and recipients (both those who are currently going through the process and those who have gone through it in the past) to tell us about their experiences - what went well, what didn't go so well, and what could be better.

We're using Human-centred-design to make this happen. This is a creative process that, well, puts the human (that's YOU) in the centre of what we build and create, so you'd be working WITH us to make things better for patients like you in the future. Can you help?

Eligibility

Currently recruiting participants: Yes

Eligible ages: 18 to 120

Accepts healthy participants: Yes

Inclusion criteria:

• Adults, 18 years old or above.
• Kidney transplant donors and recipients attending (or have attended) the Calgary transplant clinic and/or their caregivers.
• Able to communicate in English (for interviews / focus groups).
• Available to attend a focus group or interview in Calgary, either at the Foothills campus of the University of Calgary, a suitable and mutually agreeable location within the greater Calgary area, or via online video conferencing software (i.e., Zoom).

Exclusion criteria:

• Individuals who have not attended the Calgary transplant clinic.
• Unable to communicate in English.
• Unable to attend a focus group or interview at a mutually agreeable location in the greater Calgary area or with video conferencing software within the data collection time period.

Participate

Fill out the following form if you want to participate in this research

Method of contact

Additional information

Contact information

To learn more about this study, or to express interest in the study, please contact us at the email address or phone number below and we'll get back to you within 1-3 business days. Thanks!

Principal investigator:

Ngan Lam

Clinical trial:

No

REB-ID:

REB24-1888