Solutions for Pediatric Chronic Pain in Primary Care
Summary
We are conducting a study on explore the experiences of children and teens with chronic pain and their families accessing healthcare services in primary care settings. To do this, we are looking for young people (aged 10-21) with chronic pain, and their parent or primary caregiver, who would like to share their experiences.
To participate, you, and your parent or child, will be asked to attend 2 virtual interviews that will take place over Zoom. These interviews with be conducted by a research team member to learn more about your experiences seeking chronic pain care in primary care settings (e.g., your family doctor's office, a walk-in clinic).
The first of these interviews will last about 60-90 minutes. You can attend this interview on your own. What we learn will allow us to a draft a visual map of your experience accessing pain services, called a "patient journey map."
The second and final interview will last about 45-60 minutes. You will attend, along with your parent or child, to review the journey map and discuss possible solutions to the challenges that your have illustrated along their your journey.
Eligibility
Eligible ages: 10 to 21
Inclusion criteria:
Eligible children and adolescents:
1. 10-21 years old
2. Have chronic pain (i.e., pain lasting >3 months)
3. Speak English
4. Live in Canada
5. Have experience accessing primary care services for chronic pain
6. Have a parent or primary caregiver who is willing to participate
Eligible adults:
1. Parent or primary caregiver of a 10–21 years old child
2. Child lives with chronic pain (i.e., pain lasting >3 months)
3. Speak English
4. Live in Canada
5. Child has experience accessing primary care services for chronic pain
6. Child with chronic pain is willing to participate
Exclusion criteria:
1. Inability to read/speak English
2. Inability to access the internet
3. Not located in Canada
4. Significant cognitive impairment
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
If you are interested in participating or learning more, please contact the research team at:
Principal investigator:
Kathryn Birnie
Clinical trial:
No
REB-ID:
REB24-1353