Canadian iCare-PD
Summary
This study will implement the iCARE-PD model which consists of an approach by health providers, to support patients through the challenges of their disease and facilitate their access to health resources in the community. The iCARE-PD promotes self-management skills (i.e. e.g. to improve swallowing and speech by joining speech therapy sessions and doing vocal exercises at home, to improve balance by joining a exercises group or a fall prevention clinic) that will simplify the use of available specialized services with little increase in resources and cost. To provide more effective integration of care, technology will be explored to share health information using electronically delivered study questionnaires.
Eligibility
Eligible ages: 20 to 80
Inclusion criteria:
People who have been diagnosed with Parkinson’s Disease with complex care needs i.e. those who have a clinical diagnosis of more than 8 years will be included.
Exclusion criteria:
People who lack autonomy due to motor problems, have significant dementia or live in a chronic care facility with nursing care needs will be excluded from the study.
Participate
Fill out the following form if you want to participate in this research
UCalgary Notice of Collection
The University of Calgary (UCalgary) respects your privacy and is
committed to ensuring the privacy of all students, staff, and community members. Your personal information is being
collected under the authority of section 4(c) of the Protection of Privacy Act (POPA). It will be collected, used
and disclosed for the purposes outlined in UCalgary’s
Notice of
Collection, Use and Disclosure of Personal Information and managed in accordance with UCalgary’s
Privacy
Management Program.
Your personal information may be input into automated systems to generate content or make decisions,
recommendations, or predictions. If you have questions regarding this notice or UCalgary’s collection,
use, or disclosure of your personal information, please contact
accessandprivacy@ucalgary.ca.
Additional information
Contact information
Veronica Bruno
Principal investigator:
Veronica Bruno
Clinical trial:
No
REB-ID:
REB21-1520