The Canadian Neuromuscular Disease Registry

Summary

The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.

The Canadian Neuromuscular disease registry (CNDR) encourages research that has tangible benefit to patients and promotes development of effective therapies for neuromuscular diseases including:
- Clinical Research that will improve patient care and best practices
- Scientific research that increases understanding of disease pathology
- Epidemiological studies to better understand the nature and burden of neuromuscular disorders
- Clinical trials of new therapies