The Canadian Neuromuscular Disease Registry


The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with a neuromuscular disease. It collects important medical information from patients across the country to improve the understanding of neuromuscular disease and accelerate the development of new therapies.

The Canadian Neuromuscular disease registry (CNDR) encourages research that has tangible benefit to patients and promotes development of effective therapies for neuromuscular diseases including:
- Clinical Research that will improve patient care and best practices
- Scientific research that increases understanding of disease pathology
- Epidemiological studies to better understand the nature and burden of neuromuscular disorders
- Clinical trials of new therapies


Currently recruiting participants: Yes

Eligible gender: Male, Female, Transgender, Other

Inclusion criteria:

Anyone diagnosed with a neuromuscular disease.

Exclusion criteria:

Anyone not diagnosed with a neuromuscular disease.
Anyone not able to provide informed consent.


This study is not currently accepting expressions of interest via the website. Please see contact information below.

Additional information

Contact information

To get involved you should contact the CNDR National Office to determine your next steps. Canadian Neuromuscular Disease Registry 1-877-401-4494 403-210-7577

Principal investigator:

Lawrence Korngut

Clinical trial: