CANSARCC AHS

Summary

Sarcoma is a rare cancer with more than 100 subtypes, each having different prognosis and requiring its own treatment approach. The rarity and complexity of sarcoma make it difficult to conduct high quality research with large patient samples. There is an urgent unmet need for sarcoma specialists to collaborate to create large databases which are critically needed to conduct well-powered research. The Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC) is a group of sarcoma care providers across Canada committed to form a multicentre collaborative team to generate and maintain such a database. This study is a part of this pan-Canadian initiative that we would like to contribute Alberta (AB) provincial patient data including both children/adults. This participation will enable AB patients to have their data included in future research and create opportunities for AB investigators to lead clinical and translational research to improve outcomes for the patients that we serve.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 1 to 99

Inclusion criteria:

Any patients who were/are diagnosed with sarcoma will be suitable for this study

Exclusion criteria:

patients who did/do not have a sarcoma diagnosis or declined to share their clinical information will not be suitable for this study

Participate

Fill out the following form if you want to participate in this research

Method of contact

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Additional information

Contact information

PI: Xiaolan Feng co-PI: Michael J Monument, Jan-Willem Henning, Omar Khan, Hatim Karachiwala, Melanie Finkbeiner

Principal investigator:

Xiaolan Feng

Clinical trial:

No

REB-ID:

HREBA.CC-22-0074