CANSARCC AHS
Summary
Sarcoma is a rare cancer with more than 100 subtypes, each having different prognosis and requiring its own treatment approach. The rarity and complexity of sarcoma make it difficult to conduct high quality research with large patient samples. There is an urgent unmet need for sarcoma specialists to collaborate to create large databases which are critically needed to conduct well-powered research. The Canadian Sarcoma Research and Clinical Collaboration (CanSaRCC) is a group of sarcoma care providers across Canada committed to form a multicentre collaborative team to generate and maintain such a database. This study is a part of this pan-Canadian initiative that we would like to contribute Alberta (AB) provincial patient data including both children/adults. This participation will enable AB patients to have their data included in future research and create opportunities for AB investigators to lead clinical and translational research to improve outcomes for the patients that we serve.
Eligibility
Eligible ages: 1 to 99
Inclusion criteria:
Any patients who were/are diagnosed with sarcoma will be suitable for this study
Exclusion criteria:
patients who did/do not have a sarcoma diagnosis or declined to share their clinical information will not be suitable for this study
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
PI: Xiaolan Feng co-PI: Michael J Monument, Jan-Willem Henning, Omar Khan, Hatim Karachiwala, Melanie Finkbeiner
Principal investigator:
Xiaolan Feng
Clinical trial:
No
REB-ID:
HREBA.CC-22-0074