Characterization of Recurrent RIME

Summary

Have you been diagnosed with any of the following?

Stevens-Johnson Syndrome (SJS)
Recurrent Infectious Mucocutaneous Eruptions (RIME)
Mycoplasma pneumoniae Induced Rash & Mucositis (MIRM)
Erythema Multiforme (EM)
Toxic Epidermal Necrolysis (TEN)


Researchers want to understand why people get these severe burn-like skin reactions following infections so that we can better treat them and prevent them from happening to you again.

We will collect information from your medical records to identify possible triggers. Since these reactions are rare, we are working with hospitals across the United States and Canada to enroll patients and find answers faster.

You will be asked for a sample of saliva (spit) and have the option to give a blood and/or skin sample.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 0 to 100

Inclusion criteria:

To be eligible for this study you must have one of these diagnoses:

Stevens-Johnson Syndrome (SJS)
Recurrent Infectious Mucocutaneous Eruptions (RIME)
Mycoplasma pneumoniae Induced Rash & Mucositis (MIRM)
Erythema Multiforme (EM)
Toxic Epidermal Necrolysis (TEN)

Participate

Fill out the following form if you want to participate in this research

Method of contact

UCalgary Notice of Collection
The University of Calgary (UCalgary) respects your privacy and is committed to ensuring the privacy of all students, staff, and community members. Your personal information is being collected under the authority of section 4(c) of the Protection of Privacy Act (POPA). It will be collected, used and disclosed for the purposes outlined in UCalgary’s Notice of Collection, Use and Disclosure of Personal Information and managed in accordance with UCalgary’s Privacy Management Program. Your personal information may be input into automated systems to generate content or make decisions, recommendations, or predictions. If you have questions regarding this notice or UCalgary’s collection, use, or disclosure of your personal information, please contact accessandprivacy@ucalgary.ca.

Additional information

Contact information

Dr. Michele Ramien 403-966-7677 or michele.ramien@ahs.ca if <18 years old Clinicaltrials@dermatology.wisc.edu or (608)-287-2622 if >18 years old

Principal investigator:

Michele Ramien

Clinical trial:

No

REB-ID:

REB21-1487