Development and evaluation of a patient-centered electronic outcome assessment (strokePRO) system for acute stroke trials


The purpose of this study is to meaningfully talk with stroke survivors to understand their experience with previous stroke trials and post-stroke outcomes assessment during their recovery. This is because we hope to develop an electronic tool called strokePRO, which will help measure and collect outcomes of stroke patients through an easier and faster method than what is currently used.

The first step in the process of developing the strokePRO system is to interview stroke patients and survivors about their past experiences. Thus, your participation will involve two parts. The first part is a one-on-one online meeting with a member of our research team, where we present to you to findings of our previous stroke research and have you identify your priorities when it comes to stroke outcomes. Based on findings from the one-on-one interviews we will be developing a focus group guide where we'll ask you to participate with up to 5 additional participants. In this focus group, you will be asked for your thoughts on the most important post-stroke outcomes, any barriers you previously faced, and your preferences for an electronic tool.


Currently recruiting participants: Yes

Eligible gender: Male, Female, Transgender, Other

Eligible ages: 18 to 100

Inclusion criteria:

1. lived experience with ischemic stroke or transient ischemic attack
2. previous or current participation in clinical trials of acute stroke intervention
3. ability to provide informed consent
4. ability to read and communicate in English

Exclusion criteria:

1. Has not experienced an ischemic stroke or transient ischemic attack.


Fill out the following form if you want to participate in this research

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Contact information

Dr. Tolulope Sajobi

Principal investigator:

Tolulope Sajobi

Clinical trial: