Development and evaluation of a patient-centered electronic outcome assessment (strokePRO) system for acute stroke trials
Summary
The purpose of this study is to meaningfully talk with stroke survivors to understand their experience with previous stroke trials and post-stroke outcomes assessment during their recovery. This is because we hope to develop an electronic tool called strokePRO, which will help measure and collect outcomes of stroke patients through an easier and faster method than what is currently used.
The first step in the process of developing the strokePRO system is to interview stroke patients and survivors about their past experiences. Thus, your participation will involve two parts. The first part is a one-on-one online meeting with a member of our research team, where we present to you to findings of our previous stroke research and have you identify your priorities when it comes to stroke outcomes. Based on findings from the one-on-one interviews we will be developing a focus group guide where we'll ask you to participate with up to 5 additional participants. In this focus group, you will be asked for your thoughts on the most important post-stroke outcomes, any barriers you previously faced, and your preferences for an electronic tool.
Eligibility
Eligible gender: Male, Female, Transgender, Other
Eligible ages: 18 to 100
Inclusion criteria:
1. lived experience with ischemic stroke or transient ischemic attack
2. previous or current participation in clinical trials of acute stroke intervention
3. ability to provide informed consent
4. ability to read and communicate in English
Exclusion criteria:
1. Has not experienced an ischemic stroke or transient ischemic attack.
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
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the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
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Additional information
Contact information
Dr. Tolulope Sajobi
Principal investigator:
Tolulope Sajobi
Clinical trial:
No
REB-ID:
REB23-1669