Diagnostic History Study.
Summary
Individuals with autism spectrum disorder (ASD) often experience misdiagnosis, difficulty in obtaining a diagnosis, or may receive multiple diagnoses. Delays in diagnosis have been shown to result in children missing out on early intervention therapies which can later have implications in their cognitive development and social interactions. Further, delays in diagnosis have been shown to create dissatisfaction among families and caregivers of children with ASD, and may contribute further to the stress they experience. This study aims to explore the diagnostic process of children with ASD, investigating caregiver satisfaction with their child's diagnosis, the stability of diagnosis, and delays experienced in the process.
Eligibility
Eligible ages: 1 to 100
Accepts healthy participants: Yes
Inclusion criteria:
1) Caregivers of children/youth 18 years of age or younger with a primary diagnosis of ASD
2) Individuals 18 years of age or older with a primary diagnosis of ASD
3) Participants are proficient in English
Participate
Fill out the following form if you want to participate in this research
UCalgary Notice of Collection
The University of Calgary (UCalgary) respects your privacy and is
committed to ensuring the privacy of all students, staff, and community members. Your personal information is being
collected under the authority of section 4(c) of the Protection of Privacy Act (POPA). It will be collected, used
and disclosed for the purposes outlined in UCalgary’s
Notice of
Collection, Use and Disclosure of Personal Information and managed in accordance with UCalgary’s
Privacy
Management Program.
Your personal information may be input into automated systems to generate content or make decisions,
recommendations, or predictions. If you have questions regarding this notice or UCalgary’s collection,
use, or disclosure of your personal information, please contact
accessandprivacy@ucalgary.ca.
Additional information
Contact information
Please contact the research team at diagnostichistory@gmail.com or Dr. Carly McMorris at camcmorr@ucalgary.ca or (403) 220-5457.
Principal investigator:
Carly McMorris
Clinical trial:
No
REB-ID:
REB16-1987