Family Integrated Care (FICare) for Inpatient Pediatrics

Summary

Everyone wants the best care possible for hospitalized children and their families. Children do better when their parents are involved in their care. Alberta Family Integrated Care (FICare) is a model of care that was adopted in Alberta’s neonatal intensive care units. With Alberta FICare parents are educated and supported to be a member of their baby’s neonatal care team as soon as they are ready and willing after admission. Alberta FICare improved parental mental health and confidence, which enabled earlier discharge. As the team who implemented Alberta FICare in all 14 NICUs within the province, we now want to know whether this model of care can benefit children and their families on pediatric units.

Currently, we are interviewing parents/caregivers/legal guardians (hereafter referred to as "parents") of children currently or recently admitted to Units 2, 3 or 4 at the Alberta Children’s Hospital. These interviews are meant to understand parents opinions of the care they received while their child was in the hospital. We are also conducting interviews with healthcare providers and management teams at Alberta Children’s Hospital to understand the specific needs of these groups. If Alberta FICare can be adapted to enhance or improve the quality of care at Alberta Children’s Hospital, we will collaborate to share this model of care with other pediatric hospitals so all Canadian children can benefit.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 18 to 99

Accepts healthy participants: Yes

Inclusion criteria:

We will enroll parents/caregivers, healthcare professionals and managers at the Alberta Children's hospital to take part in a one-time interview (telephone, video or in-person).

PARENTS:
We are looking for:
• Parents/caregivers of a child/youth:
- recently admitted to Unit 2, 3 or 4 at the Alberta Children’s Hospital
- aged 0-18 years
- hospitalized for at least 1 week
• Mothers, fathers, or legal guardians with legal authority to consent to participate
• Parents/caregivers who can understand English sufficiently to answer interview questions

HEALTHCARE PROFESSIONALS AND MANAGERS:
We are looking for:
• Hospital administrators or managers responsible for unit 2, 3 or 4 for at least 1 year; and/or
• Members of the multidisciplinary team on unit 2, 3 or 4 for at least 1 year

Exclusion criteria:

We will not be able to include parents who:
• Are unable to consent because of legal or social issues, or language barriers
• The hospitalized child/youth is living separate from their parents or have no caregiver involvement
• The hospitalized child/youth is receiving palliative care

Participate

Fill out the following form if you want to participate in this research

Method of contact

Additional information

Contact information

Please contact our team if you are interested in participating. Benzies@ucalgary.ca (Principal Investigator) Kelsey.Meyer@ucalgary.ca (Project Specialist)

Principal investigator:

Karen Marie Benzies

Clinical trial:

No

REB-ID:

REB23-1087