SIH Registry


This study is a registry or database collecting information on patients who have been diagnosed with spontaneous intracranial hypotension or CSF leaks. We hope to increase our understanding of this condition by collecting data to help us understand specific aspects of this condition, such as what tests may be the most appropriate to diagnose this condition, and what treatments may offer the most benefit. There is no intervention with this study. It simply seeks to collect data from medical records and if needed, by patient interview.


Currently recruiting participants: Yes

Eligible gender: Male, Female, Transgender, Other

Eligible ages: 18 to 65

Inclusion criteria:

1. Patients aged 18 and over.
2. Diagnosed with CSF leak or spontaneous intracranial hypotension by a physician.

Exclusion criteria:

1. Patients with CSF leaks due to other causes, such as head injury or trauma, or following lumbar puncture or other intervention.


This study is not currently accepting expressions of interest via the website. Please see contact information below.

Additional information

Contact information

Please contact the Calgary Headache Assessment and Management Program Research Office at 403-956-3427 if you are interested and may be eligible for the study.

Principal investigator:

Farnaz Amoozegar

Clinical trial: