Assessment of health-related quality of life and associated mental health challenges in patients with Vasculitis living in Canada (VASQOLCANADA)
Summary
We would like to understand how living with vasculitis affects your quality of life (QOL). This includes, for example, your well-being, physical activity, leisure, or work. We suspect that vasculitis lowers your QOL. This can cause emotional distress and lifestyle changes for you and your family. Researchers have conducted limited studies on the effect of vasculitis on the quality of life of patients. This information is even more limited for Canadian patients living with vasculitis. This study will help us understand how vasculitis affects your QOL. It will guide us in improving our care for you and others with vasculitis.
Eligibility
Eligible ages: 18 to 100
Inclusion criteria:
You have a diagnosis of:
• Granulomatosis with polyangiitis (previously Wegener's granulomatosis)
• Microscopic polyangiitis
• Eosinophilic granulomatosis with polyangiitis (previously Churg-Strauss syndrome)
• Polyarteritis nodosa
• Giant cell arteritis
• Takayasu’s arteritis
• Other primary vasculitis, including:
o Behçet’s syndrome
o IgA vasculitis (previously Henoch-Schönlein purpura)
o Others.
You are over 18 years of age.
Exclusion criteria:
You are not eligible
1- If you do not have a diagnosis of vasculitis confirmed by a physician
2- You are younger than 18 years old
Participate
Additional information
Contact information
Calgary Vasculitis Association: https://calgaryvasculitis.com
Principal investigator:
Aurore Fifi-Mah
Clinical trial:
No
REB-ID:
REB24-0382