Development of the Fear of Cancer Recurrence Scale for Pediatric Survivors of Childhood Cancer (FCRS-Peds)
Summary
This study is about making a questionnaire to measure fear of cancer recurrence experienced by survivors of childhood cancer. Right now, there isn’t a great way to measure fear of cancer recurrence experienced by young survivors. This means we don’t fully understand how common it is or how it affects young survivors. Learning more about it could help improve the lives of young people who have had cancer. We will work with survivors of childhood cancer who are between 8-18 years of age to create and test questions for our questionnaire. Then, we will use statistical analyses to decide which questions to keep and use in the final version. This study is a first step to better understanding fear of cancer recurrence experienced by kids and teens. The questionnaire we make will help us to learn more about this problem for survivors of childhood cancer.
Eligibility
Eligible ages: 8 to 18
Accepts healthy participants: Yes
Inclusion criteria:
We are looking for participants who:
1) have a history of cancer
2) have completed active treatment
3) are currently 8-18 years of age
4) can fluently speak and read English
5) do not have a major developmental or psychological disorder (e.g., Down’s syndrome, psychosis)
6) are a current resident of Canada or the USA
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
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Additional information
Contact information
For more information or to participate, please email the study team at care4kids@ucalgary.ca
Principal investigator:
Fiona Schulte
Clinical trial:
No
REB-ID:
HREBA.CC-18-0346