Improving adherence and health outcomes in testicular cancer survivors using a mobile health-based Intervention: a mixed-methods pilot study
Summary
Testicular cancer (TC) is one of the most common types of cancer among men, particularly in young men aged 15 to 39, and has increased in incidence over the past two decades. Screening appointments in the months and year after TC treatment has finished is very important for long-term survival, but some survivors have trouble adhering to post-treatment screening guidelines, may frequently skip or cancel follow-up appointments, or stop attending appointments completely.
We are doing this study because follow-up and screening appointments after treatment for TC is important for monitoring for long-term effects from treatment, cancer recurrence, and psychological wellbeing. To improve this, we want to use a new mobile health application, Zamplo, which allows individuals to connect with others who have a similar diagnosis, to track their health journey (e.g. symptoms, test results, medications, etc.), and use patient reported outcomes to monitor psychological wellbeing over time.
The purpose of this pilot study is to help us understand if it is possible to do the study with a small number of participants before a larger study is started. We also hope to determine if using Zamplo may help support TC survivors in attending their follow -up appointments and with monitoring their psychosocial health over the first year after treatments for cancer.
Eligibility
Eligible ages: 18 to 100
Inclusion criteria:
You may be eligible if you:
1. Were diagnosed with testicular cancer (e.g. you are on surveillance after curative-intent chemotherapy and/or radiation therapy, and/or on surveillance after orchidectomy)
2. Finished treatment within the past 6 months or less
3. Are currently aged 18 years of age or older
4. Have access to a smart phone and internet connection
5. Can read, write, and speak English
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
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Additional information
Contact information
Dr. Nimira Alimohamed
Principal investigator:
Nimira Alimohamed
Clinical trial:
Yes
REB-ID:
HREBA.CC-22-0016
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