Information Needs and Tools for People with Epilepsy and Depression
Summary
Over 30% of people with epilepsy also struggle with a mental health disorder, the most common one being depression. Depression can make epilepsy symptoms more severe and harder to manage, making it difficult for people with epilepsy and depression to adhere to their treatment plans. This can lead to a lower quality of life for people living with both conditions. This study aims to identify the information and tools people with epilepsy need to help manage their depression.
To support this process, our team is conducting a questionnaire, focus group and World Café interviews to better understand the information needs of people living with epilepsy and depression, as well as the tools that may help them manage their condition. This study seeks to address the following research questions:
1. What are the information needs of people with epilepsy who are affected by depression?
2. What tools are available to facilitate the management of depression in epilepsy?
Eligibility
Eligible ages: 18 to 100
Inclusion criteria:
1. Belong to one of the following categories: adults with epilepsy and a depression diagnosis (diagnosed by a health professional or self-reported using a validated depression screening tool), epileptologists, other health care professionals (e.g. neuropsychiatric, clinical psychologists) involved in the care of epilepsy patients, people from an epilepsy lay organization
2. Able to provide informed consent
3. Able to understand, read and write in English
Exclusion criteria:
1. Children
2. People with moderate to severe developmental delay
3. Non-English speaking individuals
Participate
Fill out the following form if you want to participate in this research
Collection of personal information
Your personal information is collected under
the authority of section 33(c) of the Freedom of Information and Protection of Privacy Act. If
you have any questions about the collection or use of this information, please visit our
Access to Information page.
Additional information
Contact information
Dr. Nathalie Jette, Professor of Neurology, University of Calgary
Principal investigator:
Nathalie Jette
Clinical trial:
No
REB-ID:
REB25-0768