Research project title: Transitioning Patients with Advanced Chronic Kidney Disease to Home or Hospital Dialysis: Understanding the Experience and Quality of Life of Patients and Their Caregivers (TRANSIT-CARE)

Summary

The goal of this study is to better understand the experience of patients and their caregivers during the period surrounding the onset of dialysis. We will also assess changes in quality of life and physical vulnerability (frailty) of patients before dialysis initiation and up to 1 year after dialysis initiation. We will also assess the burden on caregivers. We want to compare groups that start with home dialysis and with hemodialysis in the center.

Eligibility

Currently recruiting participants: Yes

Eligible ages: 18 to 99

Inclusion criteria:

You are eligible to participate if you are
Adults followed in advanced Chronic Kidney Disease clinic.
(1)18 years and older
(2)GFR <12 in the last 3 months
(3)Desired dialysis modality determined
(4)Able to understand French or English (verbally

Exclusion criteria:

You are not eligible to participate if you are
(1) Orientation toward conservative treatment
(2) Planned kidney transplantation < 6 months
(3) Unable to provide consent due to severe cognitive or psychiatric disease
(4) Previous treatment with dialysis > 3 months
(5) Life expectancy < 6 months.

Participate

Fill out the following form if you want to participate in this research

Method of contact

Additional information

Contact information

Dr. Robert Quinn

Principal investigator:

Robert Quinn

Clinical trial:

No

REB-ID:

REB24-1926