Team Grant: Pediatric Rare Disease Clinical Network

Eligibility

For an application to be eligible, all the requirements stated below must be met:

1. The Nominated Principal Applicant (NPA) must be:
   1. an independent researcher affiliated with a Canadian postsecondary institution and/or its affiliated institutions (including hospitals, research institutes and other non-profit organizations with a mandate for health research and/or knowledge translation).
      OR
   2. an individual affiliated with an Indigenous non-governmental organization in Canada with a research and/or knowledge translation mandate.
      OR
   3. an Indigenous non-governmental organization in Canada with a research and/or knowledge translation mandate.
2. The NPA must have their substantive role in Canada for the duration of the requested grant term.
3. The Institution Paid must be authorized to administer CIHR funds before the funding can be released (see Administration of Funds).
4. The research team must include an Early Career Researcher (ECR) identified as a Principal Applicant (PA).
5. At least one project participant must be a knowledge user (including but not limited to decision makers, policy-makers, clinician scientists, health professionals) identified as Principal Knowledge User (PKU) or Knowledge User (KU).
6. In addition to the Nominated Principal Applicant and Knowledge User, at least one Co-Applicant must be a patient.
7. The applicant team must include at least one applicant who self-identifies as Indigenous (First Nations, Inuit or Métis) and/or provides evidence of having meaningful and culturally safe involvement with Indigenous Peoples.
8. The applicant team must have a Sex and Gender Champion and an Equity, Diversity and Inclusion (EDI) Champion :
   • Combined, the champions must have experience in (i) sex- and gender-based analysis (SGBA) or with gender diversity in the community; (ii) fostering EDI in research and/or applied settings (e.g., promoting equitable access to research participation or inclusion of typically underrepresented population groups in decision making), and (iii) creating Sex and Gender and EDI plans for diversity of team composition;
   • These individuals may hold other roles within the team in addition to standing as the team's Sex and Gender and EDI champions;
   • The Sex and Gender and EDI champion roles may be served by the same individual or different individuals.
9. The applicant team must include representation from a minimum of five provinces/territories

Summary

This investment will catalyze the creation of a Pediatric Rare Disease Clinical Network to streamline rare diseases clinical research across Canada and to facilitate the collaboration among researchers across pillars, people with lived and living experience (e.g., patients, family, caregivers), health care providers, industry, policy and regulatory bodies. This Network will maximize synergies to advance discovery across the rare disease continuum from prevention to diagnosis through to treatment and survivorship to improve health outcomes for children and adolescents affected by rare diseases. The aim is to support national and international clinical trials to rapidly advance discoveries to support rare diseases patients and their families across Canada. It will maximize the impact of the Government of Canada's efforts deployed in the regulatory modernization for health products, improve Canada's standing globally, and attract industry dollars for future investments and sustainability.

Overhead

n/a

Pre-application deadlines

RSO internal deadline

Pre-application program deadline

Application deadlines

RSO final internal review deadline

Program application deadline

NOTE: Consult your Faculty Associate Dean (Research) (ADR) regarding Faculty-specific deadlines and submission processes.

Principal Investigators: Complete a Research Management System (RMS) record, including a copy of your complete application, and submit this for approvals in RMS.

Postdocs, students, and trainees: For fellowships and externally-sponsored research training awards or opportunities, you must complete the Research Funding Application Approval (RFAA) Trainee PDF form, and submit it, along with a complete copy of the application, to Research Services at rsotrainee@ucalgary.ca. Trainees should not use RMS at this time.

Approvals: The University of Calgary requires that all funding applications be approved prior to submission. Approval requires signatures via either RMS or the RFAA Trainee form, in the following order:

• Principal Investigator
• Department Head
• Faculty ADR/Dean
• Research Services (on behalf of the Vice-President Research)

Read the Meaning of Grant Signatures policy to understand what your approval means. Please see the agency guidelines for details about which signatures are required on your application, as it may differ from internal requirements.

Late submissions: Late submissions will only be accepted in cases of medical or family emergencies, or other exceptional circumstances. If you submit your RMS record to Research Services after the internal deadline has passed, you must secure additional approvals. Please read: Late Applications Process.

Submission Process:

Expression of Interest (EOI) due directly to CIHR via email to support-soutien@cihr-irsc.gc.ca by 6:00PM Calgary time on June 27, 2023. No RMS needed for this step.

Full application, plus approvals in RMS, will be required by RSO by noon on October 19, 2023. Please be sure to select "Submitted for approvals" (Under Save & Progress) in RMS in enough time to allow for approvals from your Department Head and/or ADR prior to the internal RSO deadline. Consult your department and faculty for more information on their approval processes and timelines.

Do not submit through ResearchNet until RSO's signature has been granted!! 

Once institutional signature has been obtained, a copy of the CIHR signature page will be available via the RMS record, under Documents. Upload the CIHR signature page and routing slip in the Print/Upload Signature Pages task in ResearchNet by 6:00PM Calgary time on October 24, 2023.

RESOURCES

Support for projects involving Indigenous Research:

Support with the development of your grant application is available internally through the Indigenous Research Support Team (IRST). Applicants can reach out by email to IRST at IRST@ucalgary.ca in advance of the RSO internal deadline. For more information about IRST, please visit the IRST webpage.

Support for Knowledge Engagement:

Support for knowledge mobilization/engagement/translation is available internally through the Knowledge Engagement Team. Applicants can reach out by email to the KE team at knowledge.engagement@ucalgary.ca in advance of the RSO internal deadline. For more information, please visit the KE team webpage.

Support for Research Data Management:

For information on research data management plans, processes, or best practices for your research program, please contact research.data@libanswers.ucalgary.com and/or visit https://libguides.ucalgary.ca/researchdatamanagement.

RMS: Creating a Pre-Award Application